|
|
Australian Online Support
The brain tumour survivors group is an online discussion forum
with very useful information.
http://www.btsurvivor.com/
Oz Brain Tumour group have a support forum through yahoo for people
with brain tumours.
http://health.groups.yahoo.com/group/OzBrainTumour/
Oz Brain Tumour group also have a support group through yahoo for carers.
http://health.groups.yahoo.com/group/OzBTcarerplace/
Back to top of
page
online
support groups
The subscription url http://groups.yahoo.com/group/Medulloblastoma
Communicate with parents, patients,
relatives & Dr's through email on the subject of Medulloblastoma
and PNET brain cancers. Some other types of PNET welcome are:
ependymoblastoma, pineoblastoma, spongioblastoma.
http://listserv.acor.org/archives/ped-onc.html
Paediatric cancers electronic support group. This group is for parents,
family, and friends of children with childhood cancer. The children have
all types of cancer: leukaemia, neuroblastoma, brain tumours,
rhabdomyosarcoma, etc.
http://www.braintrust.org/services/support/
A list serve for brain tumour
patients and caregivers. Online support groups for specific brain tumours
are also hosted by Brain trust. http://www.braintrust.org/services/support/braintmr/quickcommands.html
Back to top of
page
Information
Resources
Related to Paediatric Neuro-oncology. This
is an excellent resource, well-maintained links to all matters related
to paediatric tumours
of the brain and spinal cord. As well as treatment and research, the
site covers other matters, such as pain and disabilities.
Oncolink
on Brain Tumours
Paediatric
Brain Tumour Patient Resource Handbook,
also at the same site Children's
Brain Tumour Foundation of Canada.
Oncolinks Ped
Brain Tumour index page.
Virtual
Trials list of links (paediatric brain tumours
specifically).
Descriptions of the disease, treatment: The
Brain Tumour Society.
Childhood
Brain Tumours from the American Brain Tumour
Society.
Children's Cancer
Web, brain
tumours, some descriptions but mostly
links.
St. Judes,
index of all childhood cancers, including paediatric
brain tumours.
Childhood
Brain Tumour Foundation, great original
information, articles about new research, more.
Tillison
Brain Tumour Pages, this link takes you
to the main index, at which they list some very good original pages
applicable to paediatric brain tumours.
Give
Hope. A good brain tumour information
site, including new treatments. Based in the UK.
National
Brain Tumour Foundation. A clearing
house for brain tumour information.
Childhood
Brain Tumour Foundation. Good
information on brain tumour research.
Back to top of
page
Personal pages
Personal
pages of young people with brain tumours.
Stories of children that have had brain tumours.
Back to top of
page
Living
with brain tumours
http://www.tbts.org
The Brain Tumour Society provides resources
for patients, survivors, family, friends and professionals.
http://www.abta.org/whoweare/advocacy.htm
NABTC is a network of charitable
organizations dedicated to eradicating brain tumours. The Coalition
represents the interests of its combined constituency by raising awareness
of the problem and by advocating for increased research funding and other
issues affecting brain tumour patients.
http://www.caregiver.org/factsheets/diagnoses/brain_tumor.html
http://www.cancermed.com
Temozolomide
for Brain Cancer
Cytostatic
Agents in the Management of Malignant Gliomas
Brain
briefings : glioma brain tumours
http://www.moffitt.usf.edu/pubs/ccj/v5n2/article7.html
Antisense
Oligodeoxynucleotide Technology: Potential Use for the Treatment of Malignant
Brain Tumours Herbert H. Engelhard, MD, PhD
Methotrexate: a promising therapy for brain cancer
Barrie Harrison on
08/01/98
at
03:36
Category: cancer, methotrexate, brain cancer One form of brain cancer that
may develop in PLWHA is called PCNSL, which stands for primary central
nervous system
http://www.dcn.ed.ac.uk/ecno/
http://www.cancerbackup.org.uk/info/cns.htm
http://www.crc.org.uk/cancer/Aboutcan_common5.html
http://oncolink.upenn.edu/disease/ped_brain/
http://www.tbts.org/cancerclusters.htm
http://www.bccancer.bc.ca/cmm/neuro-oncology/
http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe
http://www.findarticles.com
http://www.nlm.nih.gov/medlineplus/braincancer.html
http://www.moffitt.usf.edu/pubs/ccj/v5n2/department1.html
Brain Tumour Therapy: New Lights on the Horizon
http://www.neurosurgery.org/tumor/selectreview
http://www.cancerbacup.org.uk/
Coping
with advanced cancer
Management
of Cerebral Metastases: The Role of Surgery
Back to top of
page
drugs
drugs
like temodal
http://www.emims.net/login/main/login.htm
harvard
medical schools drugs information register
link
for drug therapy info
Back to top of
page
complementary
& holistic therapies
http://www.holisticcancersolutions.com/braintumorsarticle.htm
Back to top of
page
|
|